FriendlyDragonSpouse
Wittering and ranting on the things that mean most to me.
Wednesday, 12 February 2025
Adventures in Politics
Tuesday, 20 August 2024
Access
My son is an ambulatory wheelchair user. He's about to start university, and today we travelled into central Manchester for his Disabled Students Allowance (DSA) assessment, to determine what equipment and support he needs to succeed while he's there. It was a refreshing change, after years of dealing with the DWP on behalf of two disabled children/young adults, to encounter an assessor who understood their brief and whose objective was to find the right tools and recommend them. All in all, quite a postive day.
Getting to the assessment centre, though, was another matter. I didn't want to drive into central Manchester (there are too many stealth bus lanes and closed-to-ordinary-traffic roads these days aimed at trapping the unwary occasional traveller to our fair city in its penalty traffic camera system) but we have an integrated public transport system and it's only three miles, so this shouldn't have been a problem.
We couldn't go by train because Levenshulme still has no disabled access (I've lived here nearly 40 years and it's been promised for pretty much all that time). If you look closely at this lovely print by my friend Paul Magrs, you'll see the problem. No matter that disabled people and parents with prams can't actually get from the street to the ticket office or platforms - as our councillor told us, we have a lovely new mural to enjoy to raise morale!
My son's not keen on buses which, while fairly plentiful, can be tricky to get on and off, even where the suspension can be dropped to street level (he could do a whole separate blog post about the trials of getting around by bus) and the audible disgruntlement of some of the travelling public make it a less than pleasurable experience.
His favoured mode of transport is the Metrolink system, which has good accessibility and which has a stop about 2-3 minutes walk/wheel from the assessment centre, so Plan A was drive the 3.5 miles to East Didsbury metrolink, park and get the tram into town.
We got to East Didsbury to find NO parking spaces (Note to Offspring: apply for that Blue Badge before you go to uni) so we had to devise a Plan B, which was to drive all the way back past home and another 3 miles into the city centre to park near that light-sapping place that replaced the old BBC studios on Oxford Road (Circle Square). This was about a ten minute walk/wheel from the assessment centre, with a light uphill incline, but nothing like the hills in Leeds where he will be studying.
Gentle reader, if you are not disabled you may never have noticed the appalling quality of dropped kerbs in the centre of this "world class city" - they either aren't dropped enough, or too much (so that puddles form in them) or the surrounding tarmac is so poorly maintained that any advantage to dropping a kerb is lost. My son is fit enough to do a mini-wheelie to get himself over the initial bump of a not-quite-dropped-enough kerb, but many wheelchair users could not. We can understand (if not be happy about) the paltry 10 functional dropped kerbs of the 38 he had to navigate other week while taking part in Levenshulme Pride - after all, it's "only the suburbs" and there's no money - but the Manchester is allegedly one of the country's major urban centres, one of the flattest cities in the country and we love it to bits, but really - this is the state of just one the kerbs that has been made 'accessible' (all of that cracked tactile paving was loose and unstable).
So why are they so bad? Does the council just chuck the contract at the cheapest bidder? Do they not do any inspections of the work to see if it's actually fit for pupose? Maybe it's just that until and unless you experience them as a wheelchair user, they probably look lovely.
We're both taking part in the Manchester Pride march this weekend, so will keep you posted on how we get on!
Saturday, 11 November 2023
And so, Another Eulogy
Having already written, delivered and published eulogies for my parents and my partner, I thought it only right to add that of my late mother in law, who died last month. Whatever pretensions I may ever have had as a writer (ie, none) this would not have been my chosen specialist area.
Pamela Joan New 1934 - 2023
This is the eulogy I never
expected to have to give. Ordinarily, it would have fallen to Paul, the son Pam
loved so much, but sadly he’s no longer with us, so I am hoping that I can do
both of them justice today. Please forgive me if I have forgotten or missed
anything about Pam, whom I was fortunate enough to know for 35 years.
Pam was born on 30 December
1934 in Wincanton, the only child of Frank and Gladys. The family lived on Mill
Street in the town, although they stayed in touch with their extended families
in Nailsea, Yatton and Clevedon. They were frequent visitors to Nailsea, where
Frank’s family had lived for generations, and she was especially fond of her
aunt Hilda, who ran West End Stores. She also had many cousins on the Payne
side of the family, some of whom are with us today.
In 1956, Pam married local lad
Ronald New and the couple moved to Bristol, where Ron worked for the GPO (later
to become British Telecom). In 1965, they adopted a son, Paul, and the family
made their home in Headley Park, in a home with one of the finest views of the
city.
When Paul was very young Pam
worked part time, temping, but in later years she joined Royal Mail Customer
Services, from where she retired with 20 years’ service. After her retirement
she kept active, volunteering with the WRVS at Bristol Royal Infirmary for
several years.
I first met Pam in 1988 – Paul
and I had met at Manchester University, and he took me by train to meet his
mother and to show me his home city. At Stafford station he spotted a fruit
machine in need of emptying and hopped off the train, leaving me potentially
heading for a city I’d never been to and trying to locate a woman I had never
met!
Thankfully, he made the train
connection and I met Pam, thus starting a relationship which lasted until her recent
death. Pam’s mother Gladys was by this time in a care home in Clevedon, having
been diagnosed with the same dementia which Pam subsequently developed. Pam
made weekly visits from Bristol to Clevedon to visit her, initially on her
moped and later in her little Fiesta – it was only after she moved to Nailsea
that I realised quite what the journey ‘up over Failand’ entailed on a moped!
Paul and I visited as often as we could for the ten years Gladys lived at the
Belmont care home in Clevedon and as a result, I was fortunate to meet most of
the extended Payne family at family parties prior to Gladys’ death in 1996.
When she and Ron divorced in
1981, Pam had started to indulge her passion for foreign travel – firstly with
Paul and later with Brian Evans, the man who was to be her partner and constant
companion for 30 years. Together they visited all parts of the globe and had
many tales to tell of cruises and excursions.
Her retirement allowed her to
continue this, and to make frequent visits to Manchester to see her
grandchildren Megan and Josh grow up. She also had the benefit of additional
‘grandchildren’ in Aneurin and Huw, Brian’s grandsons, who were just across the
Pennines in Leeds. Meg and Josh were extremely fond of ‘Uncle Brian’ and we
were all deeply saddened when he was diagnosed with cancer. Pam spent much of
the time that he was ill caring for him in his home at Whitchurch (they always
maintained separate homes) and after his death, she returned to Headley Park
only to find that it no longer felt like ‘home’ and so began a new chapter in
her life.
At the age of 77, she upped
sticks and moved back to Nailsea, where most of her family hailed from. The
Bakers had been resident in the West End of Nailsea for generations and she and
I were able to piece together much of the family history, thanks to Aunty
Hilda’s role as custodian of family documents and photos. It is Pam’s wish to
have her ashes interred in the family plot at Holy Trinity church where her
grandmother Annie, grandfather Charley and Hilda all rest.
The move was the best move she
could have made at that time. She was very happy in her bungalow on Ashton
Crescent, and she was also close to several of her cousins. She attended Holy
Trinity and became active in social events there. Her cousin Brenda and her
husband Dave were always at hand when Pam needed help and we are so grateful
for their love and support when we were so far away.
In 2018, her memory started to
fail and she was diagnosed with Alzheimer’s disease. Unable to continue to live
independently, she moved into residential care at Silver Trees Care Home in
Nailsea, where she continued to have fun, make friends and have a very good
quality of life for several more years. Meg, Josh and I are extremely grateful
to all the staff there who made her time with them so rewarding, and for the kindness
and support they have shown us as a family over the last year when we were
dealing with Paul’s illness and our grief after his death.
She remained unaware of the
tragically early death of her beloved son almost a year ago. I consulted family
members and we all agreed that it was kinder not to tell her, as it would have
been terribly upsetting for her to no good purpose. Her memories of him, while
they remained, will have been of a devoted and loving son, who cared for her in
her failing health as she had done for her mother. The children and I have done
our best over the last eleven months to continue this legacy on his behalf, and
I hope we have done him proud.
Pam’s was a life well lived.
From rural Somerset to the Taj Mahal and the Great Wall of China, she was
always delighted by the world around her and by those she loved. She was
delighted to learn that Megan did indeed “have a boyfriend” (a frequently
occurring question) and in the short time he knew her Logan has been a great
support to us on trips out and looking after Pam with us.
And while I will now have my
birthday back (we were both born on 30 December) it will be especially poignant
from now on, as Pam will no longer be there to share it.
Sunday, 18 June 2023
Fathers Day: an Abundance of Care
Saturday, 4 February 2023
2022: Review of the Year
“And worse I may be yet: the worst is not
So long as we can say 'This is the worst.”
I didn't blog at all in 2022. See below for the reasons:
Preface: December 2021
On a pre-Christmas trip to visit my mother in law, the clutch went on our car. It had to be towed back to Manchester from the West Country and no-one could fix it until the new year. When we hired a vehicle for 24 hours to do the last-minute Christmas Eve Stuff that couldn't be done by public transport, the vehicle hire firm accused me of putting a scratch on it (I still dispute this) resulting in a lost deposit.
January: Car Troubles
It took most of the month to find someone who could do the work, either because of being busy or unable to do the more-complex-than-just-a-replacement-clutch job. 4-figure bill in the end.
February: Illness
My partner started to suffer from reflux-y symptoms. Eventually persuaded him to consult the GP who suspected a hiatus hernia and did tests to rule out "anything more sinister." Referred to hospital for further investigations.
March, April, May: Backlogs
Covid restrictions and associated backlogs meant nothing else happened while meals became more and more difficult until he was on a soup-only diet (although chocolate always stayed down)
June: Hospital
Attended Manchester Royal Infirmary for an endoscopy but couldn't view the stomach due to the discovery of a large tumour in the oesophagus preventing anything non-liquid getting in there (which explained the soup and chocolate). Referred for more scans/tests at MRI, Trafford General and Salford Royal.
SatNav getting a lot of use
July: Plague
Outcome of scans = yep, definitely cancer. Two options:
- Nasty, long operation, requiring up to a year recovery.
- Chemo
Wednesday, 1 February 2023
So it Goes
Paul New 1965-2022
At his happiest with solitude and something to read |
My late partner Paul was a fan of Kurt Vonnegut's phrase from Slaughterhouse 5, so it seems appropriate to use it as the title of this post dedicated to him. As many friends couldn't get to his funeral, I thought I would share some of the awfulness that was 2022, and by contrast the positivity and love his funeral and wake engendered.
Because his final days were so rapid and traumatic, we hadn't had the time to discuss his funeral wishes with him (one of the few advantages a dying man with cancer has over those who go suddenly and unexpectedly). The only thing we knew for certain was that he wanted to be buried rather than cremated (although we never really discussed why) and so we planned for a burial in Manchester, in December, in what turned out to be the most prolonged cold spell for years.
In the days after his death, my son Josh and I started putting together a Spotify playlist of a whole load of songs that he loved, that reminded us of him, or which spoke to something which meant a lot to him (protest songs, mainly; the angrier the better). This was as much therapy for us as anything else but from this the first framework of a funeral service started to come into view.
He was not a religious man so we didn't have to include any hymns, and therefore had free reign to use whatever we wanted. We were keen to avoid clichés, so although he loved Ralph Vaughan Williams, we didn't include any classical music - do we really need to hear that damned lark ascending yet again, beautiful as it is?
Instead, we went for Hallelujah ("No, not that one!") as the song to which he entered the chapel. As we followed him in, I noticed friends and colleagues from all areas of Paul's life in addition to immediate family, as well as a small tribe of Josh's friends who had travelled from all over the country to come and support him. I also knew that there were many others who had wanted to attend but were unable to make it due to other commitments and a rail strike (and he absolutely would not have wanted anyone to cross a picket line on his account).
We were fortunate that my oldest friend, an experienced celebrant, agreed to conduct the service, which meant that she actually knew the deceased in life. There's nothing worse than someone describing your loved one where it's clear they have no clue about who they were or anything much about their life.
The tributes started with Josh reading a poem which he had been reading the day we broke the news to the children about Paul's diagnosis.
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This is a print Josh made from an original artwork by his friend Salem (@voidheaded on Instagram), whose other work can be found here: https://www.redbubble.com/people/cyberrhaunt/s |
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I found this with his mum's photos. Paul is the one in the middle at the back with the glasses and his tie crooked |
For a few months we were simply friends (at one point unsuccessfully trying to match-make for each other with other FilmSoc members) until the night of the legendary All-Night Film Show when, at 3am, he shambled along the corridor and leant against the projection box door - taken off its hinges for access reasons - took his John Lennon specs off and rubbed his eyes. It was at this moment I thought “What lovely eyes he has!” and that was it – for the next 34 years, we were virtually inseparable, apart from the 10 months I spent in Pennsylvania, to where he made an international phone call to propose to me in 1989. Sadly, we never did get around to the wedding (it was being planned over the last few months but time ran out on us) but that notwithstanding we had the most glorious life together.
FilmSoc has been central to our lives – initially, the summer FilmSoc annexe at our old house on Slade Lane, where many a review was written (usually at the last minute), films booked, programmes planned; and latterly the source of so many close friends, several of whom are godparents to Meg and Josh. Paul was delighted that this love of film passed down to the next generation, although he and Josh’s reciprocal film education will now remain unfinished.
Music was also central to both our lives. Paul loved music but was legendarily tone-deaf and never understood music theory. We watched documentary after documentary from the best explainers – Howard Goodall, Neil Brand and others – and he still understood not one word of it. Our tastes were diverse but grew together over the years, although I’ve never got the Jesus and Mary Chain and he never got Genesis! The children and I have found comfort over the past weeks in putting together a playlist of his favourites, songs that mean something to us or which make a social or political point.
On leaving university, Paul joined Manchester City Council’s Homeless Families Temporary Accommodation team. For several years, many of his colleagues were also our social circle, with loads of pub quizzes and the fabled trip to York races in 1996. I drove the team there in a minibus and then headed over to visit Philippa, our celebrant today, and her family who lived nearby. It was only on our return to Manchester that we had discovered our adopted city had been blown up.
Over the years, I came to know Paul’s home town of Bristol well. He always loved it, although he was torn between “These are my people!” and “Why does everything shut at half past five?” We visited Pam regularly as well as his grandmother in Clevedon, and Ron, who had remarried after his and Pam’s divorce. It was on one of these trips out to the pub with his dad in 1997 that we told him we were expecting Megan. As we said goodbye, Ron pressed petrol money on Paul, who protested that he was in his early 30s and working. “You’ll need it,” Ron said, “Now you have the babby on the way.” Sadly, Ron did not live to see his new granddaughter.
The role of surrogate grandfather fell to Pam’s partner of 30 years, Brian. Uncle Brian was a much-loved part of the children's lives, although I’m not sure his explanation of prime numbers ever stuck with Josh.
A naturally quiet man and an only child, Paul often seemed perplexed by the sheer loudness of my family, but it was always him who would fall back to accompany my mother while the rest of us strode off at speed, and who regularly corralled the children at family events. He was a good son in law to Fred and Frank and brother-in-law to Sally; he was also famously ‘Aunty Paul’ to his niece Emily for several years.
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A rare one of all of us. Taken on mum and dad's last trip out for a drink in 2016, nicknamed Operation Otter |
As you’ve already heard, Paul was the most wonderful father despite his assertion that he was deeply unsuited to the role. From day one, he and Meg had an invisible bond – it was always Paul who could calm her when no-one else could and he continued to be her guide and her champion, delighting in her (belated) educational achievements which were often despite rather than because of the educational system.
In Josh he had a kindred spirit – a love of film, a love of words, the same ferocious intelligence. They were quite the double act and it was a joy to watch them discussing Doctor Who, cinema or politics together.
It is touching to see so many of his friends and colleagues here today along with the family. I have received so many wonderful tributes from all over the world from people who held him in very high regard. I have never met anyone who, once they got to know him, didn’t love him. As someone said to me, he was “the brightest man in any room he was in” and although he wore that intelligence lightly and was quick to highlight his failings (the lack of DIY skills, the ability to sing) he was an immensely talented and yet self-effacing man. He was also a devoted son, who continued to care for his mother as her health has declined. His curmudgeonly exterior concealed a man of great love and empathy for his fellow human beings, a committed socialist and campaigner for the underdog (hence his lifelong support of Bristol Rovers).
His one big failing was his laissez-faire attitude to timekeeping – the Douglas Adams quotation “I love deadlines. I love the whooshing noise they make as they go by.” could have been coined for him - I still remember him running down the stairs of the student union and across to the Arts Building to deliver his dissertation with seconds to spare, and nearly losing him on my first train journey to Bristol when he spotted a full fruit machine in the station café, ripe for emptying, just as the train was about to pull out. To the detriment of all of us, on this one occasion he was tragically early for something, and I so wish he’d been much, much later in his leaving of us.
A quietly effective and unassuming man, he will be missed more than he will ever know or would have acknowledged.
In the words of our friend and former house-mate Peter (who is currently en route between Japan and Vietnam) “Rest in Peace Paul New, you irreplaceable, cantankerous old star.”